I was diagnosed in February 2016, when I was 43, after being in a lot of pain from an ulcer that appeared on the side of my tongue in August 2015 which persisted and then became a hole in the tongue by the time I was seen by a nurse at my GP surgery in October 2015 and a referral was made to ENT department at my local hospital. I went to my dentist too during this time in case he could file my teeth down, in case that was why my tongue wouldn’t heal. He said I may have to chase my referral if I hadn’t heard anything by Christmas, which is what I had to do in the end. No appointment had been made for me; finally after sobbing down the phone to a lady who took pity on me, I was offered a cancellation for early February 2016. By this point I had been on a soft diet for months. A painful biopsy was taken and the following week a specialist saw me to give the news I never expected to receive.
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